I was contacted some time ago by a person from 23andMe that had seen this blog and sent me an email regarding Candice having Mastocytosis and asking if I would be interested in having her participate in their Research Initiative for Myeloproliferative Neoplasms. I was hesitant to have Candice participate but after some discussions with my family and other mastomoms I decided it couldn't hurt for her to participate, after all we are all in hopes for a cure!
Now, several months later, I have been contacted by a few family members via 23andMe family finder. I am still amazed that thing works! It is getting quite interesting. There seems to be the possibility of some family members having mastocytosis. There are many symptoms that are in common with one another. I hope that with us all working together we can help each other find some much needed results for medical and other family issues.
I am thankful that Candice participated in 23andMe.
A little about the program:
23andMe, a personal genomics company, recruited patients with myeloproliferative neoplasms (MPNs), including all forms of mastocytosis, for a research study. The project aimed to identify differences in the human genome that might predispose a person to a MPN. 23andMe provided eligible participants explanations of how their genomic data relates to a list of currently analyzed diseases and traits and to explore their ancestry. It's a lifetime membership.
The research project info: https://www.23andme.com/mpn
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